Slide
1 Collecting
data on disability services
Nicola Fortune
Australian Institute of Health and Welfare
Slide
2 Important
components in developing administrative data
collections
- Identify information needs:
what do policy makers and stakeholders need
to know?
- What data items will
produce this information?
- Seek consensus and national
consistency—extensive discussion and
consultation with stakeholders
- Consistency with key
disability concepts and other data collections
(via ICF and national data dictionary)
- Field testing of data
items
- Good documentation, including
data guides and related materials to support
those collecting the data
Slide
3 The Australian
disability services data collection
- CSTDA National Minimum
Data Set (CSTDA NMDS)
- An agreed
minimum set of nationally agreed
data items and an agreed method of collection
and transmission
- Data relate to
any service funded under the CSTDA, and
consumers
- Services covered:
Accommodation support, Community support,
Community access, Respite, and Employment
services
Slide
4 Data items
on consumers
- Demographics (7 data items)
- Living arrangements (3
items)
- Work, income and funding
(4 items)
- Carer information (5
items)
- Service user’s
disability (5 items)
- Services received (7
items)
Slide
5 Data guides
for administrative data collections
- Ensure data are collected
consistently to maximise data quality
- Explain overall
purpose, content and structure of the
collection
- Define the scope,
key concepts and counting rules of the
collection
- Provide data definitions,
coding classifications, and coding guidance
Slide
6 How often does
the consumer need personal help or supervision
with activities or participation in the following
life areas?
| |
1) Unable to do or always needs help/
supervision in this life area |
2) Sometimes needs help/ supervision in
this life area |
3) Does not need help/ supervision in
this life area but uses aids or equipment |
4) Does not need help/ supervision in
this life area and does not use aids or
equipment |
5) Not applicable |
| a) Self-care |
|
|
|
|
|
| b) Mobility |
|
|
|
|
|
| c) Communication |
|
|
|
|
|
| d) Interpersonal interactions and relationships |
|
|
|
|
|
| e) Learning, applying knowledge and general
tasks and demands |
|
|
|
|
|
| f) Education |
|
|
|
|
|
| g) Community (civic) and economic life |
|
|
|
|
|
| h) Domestic life |
|
|
|
|
|
| i) Working |
|
|
|
|
|
Slide
7 An example:
the CSTDA NMDS support needs item (1)
- Question: How often does
the service user need personal help or supervision
with activities or participation in the following
life areas?
- Defined as: The need for
personal help or supervision in each of the
areas of:
- Self-care—activities
such as washing oneself, dressing, eating
and/or toiletting;
…
Slide
8 An example:
the CSTDA NMDS support needs item (2)
- Classification:
The person can undertake activities or participate
in this life area with this level of personal
help or supervision:
- Unable to do or
always needs help or supervision in this
life area.
- Sometimes needs
help/supervision in this life area.
…
Slide
9 An example:
the CSTDA NMDS support needs item (3)
- Guide for use:
- This question records
information about a person’s need
for help or supervision in their overall
life to enable comparison with population
data and across CSTDA-funded service types.
- This means that
a need for help or supervision in a particular
area may, or may not, be directly relevant
to the service being provided.
…
Slide
10 An example:
the CSTDA NMDS support needs item (4)
- Examples:
- A person, aged between
16 and 64 years, with a severe intellectual
disability with associated physical disability
and challenging behaviour might be coded
as 1 in all areas.
- Some psychiatric
conditions may result in code 2 for interpersonal
interactions and relationships (e.g. behaving
within accepted limits) and working and
code 4 for other areas.
Slide
11 An example:
the CSTDA NMDS support needs item (5)
- When to use ‘not
applicable’ …
- Why is this data item
collected? …
- Example of how this data
item is used
- Data collected
using this data item can be compared with
population data to examine the access
of various groups of people with disability
to CSTDA service
Slide
12 Other information
to include in a data guide
- How the data should be
transmitted to the central collection agency
- When the data should be
transmitted
- How the data will be
used and reported
- Who can provide advice
on collecting data
Slide 13
Important
considerations
- Data providers
should be able to understand the data guide
and other collection materials
- Data providers should
have input into the development of the data
guide
- The data guide should
be field tested and reviewed to ensure it
‘works’
|
