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First Workshop for Improving Disability Statistics and Measurement
Bangkok, 24-28 May 2004

Slide 1

Using the ICF to combine multiple data sources: a study of unmet need

Nicola Fortune
Australian Institute of Health and Welfare


Slide 2

Using the ICF to relate different data sources

  • The use of international and national standards in data collections helps us compile meaningful data across sectors and collections
  • ICF concepts (e.g. impairment, activity limitation, participation restriction) can be identified in data collections
  • Data items from different data collections can be mapped to ICF components and domains

Slide 3

An example: estimating unmet need for disability services

  • Study of unmet needs for disability support services conducted in 2001–02
  • Two main sources of data:
    • CSTDA NMDS data on services and consumers— provided information on supply of services
    • Disability population survey data — information on unmet need for services
  • ICF provides:
    • A standard language
    • A standard grouping of activities

Slide 4

The study of unmet need

  • $519 million new funding over 2 years, 2000–01 and 2001–02
  • Objectives of study:
    • how effective was the new funding?
    • remaining shortfalls for accommodation, in-home support, respite, employment?

Slide 5

ICF concepts in the disability services collection

  • Specific impairments
  • Need for assistance with activities
    • Self-care
    • Mobility
    • Communication
    • Other activities
  • General notion of participation

Slide 6

Key concepts in the disability survey

  • Need for assistance
    • Self-care
    • Mobility
    • Communication
    • Other activities
  • A standard ‘indicator’ of disability: need for assistance
    • Relates to core purpose of a range of community services, including disability services

Slide 7

Study method

  • Statistics from:
    • jurisdictions (special survey and registers)
    • CSDA MDS
    • ABS population survey
  • Qualitative information—discussions with peak groups
  • Literature search

Slide 8

Outline of analysis

  • Identify people who need help with activities of daily living
  • Apply filters:
    • People living in households
    • People with unmet need for formal help, and the reason for this
    • Frequency of need for assistance

Slide 9

Estimated unmet need for specific services

  • Conservative estimates:
    • 12,500 people needing accommodation and respite services
    • 8,200 places needed for community access
    • 5,400 people needing employment support

Slide 10

Conclusion

  • What enabled this analysis to be done?
    • Common language in service definition and population survey
    • Standard groupings of activities used in administrative collections and population survey
    • Mapping within the ICF framework


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