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First Workshop for Improving Disability Statistics and Measurement
Bangkok, 24-28 May 2004

Slide 1

UNSD draft questionnaire on Disability Statistics

Bangkok, 24-28 May 2004

Lene Mikkelsen, Chief of Statistics Development , UNESCAP


Slide 2

Why this questionnaire?

  • Special edition of the 1991 Demographic Yearbook contained disability data
  • This could become regular feature as UN has the mandate to collect these data
  • Systematic collection and dissemination by DY would raise awareness and demand nationally
  • ICF has provided the common framework for increased comparability of disability data
  • Make disability part of the larger set of demographic statistics
  • Increase availability to an international audience


Slide 3

Information to be requested from countries

  • Basic statistical information collected in most disability surveys
  • Methodological information on questions used to identify the population with disabilities
  • Information on the collection tools used

Slide 4

Statistical data to be requested

Persons with disability:

  • by age, sex, urban/rural residence
  • 5-29 years by school attendance, single year and sex
  • 15 years and over by usual activity status, age and sex

Slide 5

Metadata to be requested

To facilitate interpretation of the data:

  • Definition of disability used in the data collection
  • Questions used to identify the population with disabilities
  • Information on the sources of the data

Slide 6

Draft questionnaire on disability statistics

  • Distributed to all participants for discussion and comments
  • Currently being tested in different regions
  • ESCAP has sent it to 10 countries participating in this workshop
  • Replies received and discussion will be reported back to UNSD

Slide 7

Options for the collection

  • The four tables could be part and parcel of the extended Demographic Yearbook questionnaire used in census years
  • The four tables could be a stand-alone questionnaire that would periodically be sent to countries

Slide 8

Section 1: data sources

  • Nine out of 10 collect some disability data
  • Six do so in the census
  • Six have undertaken some sample survey
  • Four have administrative sources, for two these are the only information on disability
  • Only two have all three types of sources

Slide 9

Section I-A: Population censuses

  • Five out of six collected disability data in the 2000 census round
  • All undertook complete counts, face-to-face
  • Reason given by all: policy use
  • All used one respondent per household
  • All published the information
  • Questions used???

Slide 10

Example of questions used in census

  • Does ….have physical or mental disability?
  • Type of disability? (blind,deaf, mute, physically handicapped,mental disability,other)
  • Cause of disability? (congenital, accident, natural disaster, violence/war, other)

Slide 11

Section I-B: Sample surveys

  • Three out of the six sample surveys were focussed on disability (one limited to children 0-6)
  • Other three were socio-economic household surveys
  • Sample size went from 5000-70 000 households or 0.01-3.5% of the population
  • Purpose was to cover analytical and policy needs
  • All were face-to-face interviews
  • Respondent head of household/self-respondent/parent

Slide 12

Section I-C: Administrative sources

  • Three countries have registration for disability (one in pilot stage)
  • Five cover any type, one state 8 major categories (medical certification?)
  • Five of six have continuous registration
  • Purpose: Identity cards, service needs and social rehabilitation, pension purpose, serve as a comprehensive tool for government, PWDs and NGOs. One stated statistics.
  • No data are generally published

Slide 13

Section III: Disability definition used

  • Five out of ten used a definition of disability which referred to activity limitations (but not in the screening question)
  • Half had in the definition some reference to permanent or long-term condition/ excluding temporary disability
  • For the question on disability most had dichotomous response categories (yes/no)
  • Two had some indication of severity categories
  • Seven stated that they used an impairment approach (3 also activity)
  • One used an activity approach

Slide 14

Section V: Why disability data is not collected

  • The country which had no data stated lack of resources
  • Two - which had only administrative sources - stated that other collections were planned

Slide 15

Table 1: Summary of replies

  • Seven out of ten could provide the disability data by sex and age, two had only all ages
  • Four stated that the data was not available by residence

Slide 16

Table 2: School attendance

  • Three countries stated that the school attendance data was not available
  • One had only educational attainment
  • One had only data for those attending school and not by sex

Slide 17

Table 3: Population by activity status

  • Half of the countries could give information on the employment status
  • Three on the not economically active (only one by age groups)
  • No one could give data on those seeking work for the first time

Slide 18

Feedback on questionnaire

UNSD would appreciate your comments on:

  • the information collected in the questionnaire (both metadata and data)>
  • Should it be a separate questionnaire?
  • What should be the frequency?
  • Whether national statistical offices can coordinate the data collection?

 

   
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