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First Workshop for Improving Disability Statistics and Measurement
Bangkok, 24-28 May 2004

Slide 1

Measurement issues

Ken Black


Slide 2

Survey Cycle

Survey Cycle


Slide 3

Selected issues in instrument development


Slide 4

Instrument development

  • Disability is a complex, multidimensional concept
  • It is perceived differently by different people, especially across age groups, cultures and time
  • A good survey instrument overcomes the subjectivity and individual perceptions of disability and produces measures which are:
    • valid (measure what they say they measure) and
    • reliable (give consistent results over repeated measures)

Slide 5

Instrument development

  • Consistency with the ICF important
  • Data items and questions can attempt to cover a broad range of domains, or just specific ones, depending upon client needs
  • Once domains chosen, need to consider whether to attempt to measure the whole domain, or just parts of it.
    • For example, if decide to include limitations in activities related to mobility, will it include:
      • changing and maintaining body position
      • carrying, moving and handling objects
      • walking and moving,
      • moving around using transportation?
    • How can this concept be described to respondents in a simple manner?

Slide 6

ADL and IADL

  • The concepts of Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) are sometimes used to classify types of disability
  • ADLs can broadly be seen as the activities:
    • Communication
    • Self-care
    • Mobility
  • IADLs can broadly be seen as the more complex activities:
    • domestic activities
    • home maintenance and gardening

Slide 7

Testing and validation

  • Development of questionnaires can take between 12 to 18 months depending on the topics and the amount of testing required to assure quality
  • Two broad categories of testing:
    • Pre-Testing
    • Field Testing

Slide 8

Pre-testing of survey instruments

  • Pre-test properties:
    • Small, targeted sample
    • Occurs before field tests
    • Controlled environment
    • Qualitative analysis
  • Pre-tests focus on:
    • the interviewers administration of the questions, and
    • the respondents ability to answer questions without error
  • Two main types of pre-tests:
    • Focus groups and
    • Cognitive testing

Slide 9

Aims of pre-testing survey instruments

  • The main aim of pre-testing is to identify the sources of potential non-sample error, including:
    • the effect the interviewer has on question responses;
    • error the respondent makes due to the questionnaire;
    • errors due to the method of delivery or errors caused by sequencing; and
    • errors caused by the interaction of these factors
  • Pre-testing can also:
    • reduce survey development time
    • reduce survey costs
    • improve the quality of data collected
  • Ideally all survey development programs should incorporate some degree of pre-testing

Slide 10

Focus Groups

  • Used to explore respondent understanding of, and reaction to terms, concepts and issues
  • Moderator led, informal small group discussion
  • Moderator remains neutral at all times
  • Several groups may be necessary to represent different population subgroups

Slide 11

Cognitive interviews

  • Cognitive interviews
    • ask respondents questions about the survey questions
    • are conducted one to one with an interviewer in a standardised environment, usually taped
  • Cognitive interviews identify problems in:
    • question comprehension
    • memory recall
    • selecting responses
    • interpretation of reference periods
    • reactions to sensitive questions
  • Cognitive interviews can use:
    • retrospective and concurrent probes
    • think alouds
    • paraphrasing
    • vignettes
    • card sorting tasks

Slide 12

Field testing

  • Two broad types:
    • Pilot tests
    • Dress rehearsals
  • Objectives are to test:
    • questions / instrument design
    • written instructions for interviewers
    • interviewer training manuals and delivery of training
    • timing / costing of the survey
    • processing systems
  • Sample size of about 300 households sufficient
  • 8 to 12 interviewers sufficient

Slide 13

Field Testing

  • Pilot testing
    • Small random sample to test
      • identification of populations
      • understanding of questions (broad)
      • question sequencing and overall survey flow
      • interviewer instructions
      • respondent reaction to questions
      • editing procedures
  • Dress rehearsal
    • Final test covering:
      • interview times
      • training of interviewers
      • field procedures
  • Debriefing reports
    • Subjective, anecdotal, based interviewer feedback

Slide 14

Context and mode effects

Disability prevalence rates vary according to type and mode of collection used to collect information

  • Disability rates were higher in ABS collections when disability questions were asked after detailed health questions (such as the SF36).
  • Disability rates generally lower in self-completion forms compared to personal interviews
  • General disability rates also lower where proxy interviewing allowed

Slide 15

Sample design

  • Samples are generally designed by statistical methodology experts
  • Sample size is determined
    • to achieve estimates of desired accuracy (sampling error) or
    • the sample that can be achieved with fixed budget
  • Sample size needed depends upon level of accuracy required for particular data items at specified levels
    • For example, a quality estimate of number of people with an employment/school participation restriction at the State level
  • Sample frame
    • area
    • list
    • combination of both

Slide 16

Selected collection issues to consider:

  • Proxy vs non-proxy interviews
    • The strong preference is to interview respondents about themselves, however in some cases, proxy interviews might be necessary, for example
      • where respondents are not competent to provide information about themselves
      • for children
      • in screening questions (for cost reasons)
  • Personal versus telephone interviews
  • Special questions versus questionnaires for sub-populations

Slide 16

Selected collection issues to consider:

  • Methods to improve collection of information from people with disabilities
    • interviewer training
    • letters to respondents
    • survey brochures (outline the need for the information and encourage cooperation
    • support from advocacy groups

Slide 18

Interviewer training

  • ABS disability survey training sessions were three days for all interviewers
  • Interviewers already well trained in general interviewing procedures, including computer assisted interviewing
  • Training covered:
    • major users and uses
    • structure of the questionnaire
    • main survey populations
    • questions and sequencing
    • coding of conditions
    • practice interviewing
    • issues relating to interviewing people with disabilities

Slide 19

Interviewing people with disabilities

  • Understand that there are myths and stereotypes about people with disabilities, but many of them are not true!!
  • Always interview in a professional and sensitive manner
  • Language is important
    • Needs to be acceptable to people with disabilities, for example, neutral and avoiding terms like disability, handicap, impairment etc.
    • Needs to be accurate and respectful of individuals with disabilities
      • Examples


Slide 20

Interviewing people with disabilities

  • Cultural issues
    • This is a very difficult area
    • Being considered by the Washington Group on disability statistics
    • Sometimes there is no overall word for "disability"
    • Reluctance in some cultures to identify people in their household with a disability
  • Ask all questions
  • Do not assume or anticipate answers
  • Be patient and let the respondent finish

Slide 21

Data processing and checking

  • Different for the different collection methods such as Computer Assisted Interviewing (CAI) or paper questionnaires
  • Create output or derived items
  • Editing
    • input (done as part of CAI instrument, or when punched or captured electronically)
  • Validation
    • of all output items
    • compared with other data sources, previous data etc

Slide 22

Tabulation

  • Determining the table content should be specified early in the development or collection phases of the survey
  • Publish output
    • based on key user needs
    • showing the most important information
    • demonstrating the range of data available

Slide 23

Consider range of important tabulations. Issues include:

  • Frequency and distribution of disability in the population
  • Prevalence of different types of disability, such as, learning, communicating etc,
  • Underlying cause of the disabilities in the population
  • Severity and estimated duration of the disability
  • Needs of people with disabilities in terms of
    • aids and equipment, assistance, services
    • met and unmet needs
  • Quality of life issues/comparisons such as, living conditions health, social and economic conditions
  • Barriers to full and equal participation in society in areas such as education, work, housing, transport etc.

Slide 24

Dissemination methods

  • Methods include:
    • Paper publication
    • Published on Website
    • Electronic tables/spreadsheets
    • Microdata
  • Promote survey data releases through:
    • Media releases
    • Seminars
    • Analytical articles etc

Slide 25

Evaluation

  • Post survey review
    • Review all aspects of the survey
    • Use interviewer feedback on issues relating to the questions, response categories, procedures etc.
    • Survey processing staff feedback on issues of processing data items, validation etc.
    • Key user feedback on whether survey data met their information needs. Identify:
      • Gaps
      • Deficiencies in collected items
  • Data quality analyses
    • Non-response evaluation

Slide 26

Types of pretesting (drop??)

  • Literature reviews
    • database and library searches
    • other statistical agencies and organisations
  • Expert reviews
  • Focus groups
  • Cognitive testing
  • Interviewer debriefing
  • Observational interviews
  • Behavior coding

   
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