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Training Manual on Disability Statistics
 
Table of Contents
Preface
Acknowledgement
List of Acronyms
1. DISABILITY STATISTICS: WHY ARE THEY IMPORTANT AND WHAT DOES ICF ADD?
  1.1 Introduction
  1.2 ICF and its purposes in disability and health statistics
  1.3 Purpose and outline of the manual
2. THE ICF FRAMEWORK
  2.1 The ICF model and conceptual framework: Defining features
  2.2 Importance of classifications and standards
  2.3 ICF terminology and definitions of disability
  2.4 ICF structure and coding – for population data collections
  2.5 ICF training and assistance available
3. DATA COLLECTION METHODS AND INSTRUMENTS
  3.1 Measurement of disability
  3.2 Population censuses
  3.3 Sample surveys
  3.4 Administrative collections
  3.5 Joint use of census and sample survey – census screen
  3.6 Strengths and weaknesses of the different data collection methods
  3.7 Relatable data
4. USING ICF IN SURVEY AND CENSUS DESIGN
  4.1 Operationalization of ICF in disability data collections
  4.2 Key Issues
  4.3 Approaches to measurement
  4.4 Question formats and response scales
  4.5 Additional issues in question development
  4.6 Census format questions
  4.7 International disability question sets
  4.8 Administrative data collections, with an Australian example
5. SURVEY/CENSUS AND ADMINISTRATIVE-BASED DATA COLLECTION DEVELOPMENT: PLANNING AND MEASUREMENT ISSUES
  5.1 Overview of the survey and census cycles
  5.2 Planning for data collection
  5.3 Asking the right questions
  5.4 Determining user needs
  5.5 Privacy implications of collecting data
  5.6 Other basic management issues in planning
  5.7 Quality of survey data and total survey error
  5.8 Issues in collection design
  5.9 Planning for administrative-based data collection
  5.10 Sample design
6. INSTRUMENT DEVELOPMENT
  6.1 Attributes of good questions
  6.2 Testing and validation of data collection instruments
  6.3 Data collection guide
7. ORGANIZING THE FIELDWORK
  7.1 Preparatory activities prior to conducting the fieldwork
  7.2 Guidelines for data collection
8. PROCESSING THE DATA
  8.1 Processing procedures
  8.2 Processing flow
9. ANALYSING AND DISSEMINATING DISABILITY STATISTICS
  9.1 Planning the outputs
  9.2 Analysis – Turning data into information
  9.3 Forms of output and dissemination strategies
  9.4 Ensuring secure data or accomplished questionnaires storage
  9.5 Documentation
10. DISABILITY STATISTICS: KEY TO SOUND POLICY FORMULATION
  10.1 Policies that can be formed out of the given disability data
  10.2 Disability guidelines for policy formulation
BIBLIOGRAPHY
APPENDICES
Appendix 1: Selected Countries on Disability Data Collection and Methodology
Appendix 2: Questionnaire Used in the Pilot Test in Five Selected Countries
Appendix 3: Sample Data Collections
Appendix 4: Biwako Millennium Framework for Action Targets
Appendix 5: Biwako Plus Five
List of Tables
Table No.
Table 2.1: ICF Levels of Functioning and Disability
Table 2.2: The ICF Domain Hierarchy
Table 2.3: ICF Chapters
Table 2.4: WHO Recommended ICF Item Pool
Table 3.1: Population Censuses: Advantages and Disadvantages
Table 3.2: Sample Surveys: Advantages and Disadvantages
Table 3.3: One-time Registration Data Collection: Advantages and Disadvantages
Table 3.4: Continuous Registration Data Collection: Advantages and Disadvantages
Table 3.5: Data Collection Methods for Disability Statistics: Comparative Summary
Table 4.1: Value of First Qualifiers in the ICF
Table 4.2: Negative Terms Relating to Disability
Table 4.3: Example of WG and WHO/ESCAP question sets
Table 5.1: Face-to-face and Telephone Interviewing: Differences in Prevalence
Table 5.2: Sample Sizes of Some Disability Surveys
Table 6.1: Attributes of Pre-testing Techniques
Table 6.2: Comparison of ‘Gold Standard’ and Survey Question Responses
Table 6.3: Comparison of Disability Census Items and ‘Gold Standard’ Survey Items
List of Boxes
Box No.
Box 3.1: 2001 Short Form/Long Form Census in Macau
Box 3.2: Dedicated Sample Survey for Disability: Australian 2003 Survey of Disability
Box 3.3: Disability Module in the Indonesian Socio Economy Survey
Box 3.4: An Overview of the Australian Disability Services Data Collection
Box 3.5: Use of the Post-Census Survey Approach to Collect Disability Data in Canada
Box 3.6: Disability Data Collection Methods Practiced in Selected Countries
Box 3.7: Using Data from a Variety of Sources: The Australian Disability Services Project
Box 4.1: Australian Experience with Disability Census Questions
Box 4.2: ICF Items in Australian and Canadian Measures of Disability
Box 4.3: Inclusion of People Living in Institutions in Disability Surveys in New Zealand
Box 4.4: Disability Data Collections Approach Employed in Selected Countries
Box 4.5: Case Study of Middle Earth: Developing Disability Measures
Box 4.6: Australian National Minimum Dataset: Data Collection Form
Box 5.1: Australian Census Advisory Group on Disability
Box 5.2: Consultation with Disability Groups: Examples
Box 5.3: The Context in Which Disability Questions are Asked
Box 9.1: Summary of Disability Data in Australia, 2003
Box 9.2: Age Profile of Persons with disabilities: Two Diagrams
Box 9.3: Disability Rates by Region, Philippines: 2000
Box 9.4: Explanatory Materials for Survey Analysis Presentation: A Guide
Box 9.5: Disability Data Statistical Releases: Some recent examples
List of Diagrams
Diagram No.
Diagram 2.1: Core Impairment vs. Impairment Continuum
Diagram 2.2: Different Health Conditions with the Same Participation Restriction
Diagram 2.3: Seeing Functions as a Continuum
Diagram 2.4: Overall Disability Score by country
Diagram 2.5: Interactions between the Components of ICF
Diagram 2.6: ICF – a combination of different vectors of functioning
Diagram 4.1: Mexican Disability Evaluation Survey, 2003
Diagram 4.2: Response Scales
Diagram 5.1: The Survey Cycle
Diagram 5.2: The Census Cycle
Diagram 5.3: Sources of non-sampling error in survey/census data
Diagram 5.4: Disability rates by age and sex, Australia, 2003
Diagram 8.1: Flow of processing survey/census/administrative – based results
List of Charts
Chart No.
Chart 1.1: Prevalence of Disabled Persons in Asia-Pacific Countries
 
 
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