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Training Manual on Disability Statistics
 
Appendix 1: Selected Countries on Disability Data Collection and Methodology
CAMBODIA
 

Source

Statistical Indicators
GDP per capita (PPP, USD), 2003 2,078 UNDP HDR, 2005
HDI ranking, 2003 130 of 177 UNDP HDR, 2005
Total Population (in thousands) 13,807 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 1.5 Cambodia Socio-Economic Survey, 1999
Disability Data Collections
Main Instruments Social Economic Surveys (SES), Population Census  
Published Sources of Statistics SES reports, "Social Statistics Yearbook"  
Active Participating Organizations National Institute of Statistics, ESCAP, WHO  
Mode of Collection Face-to-face interviews for all surveys and censuses  
Coverage Complete only in urban areas due to high costs, low awareness, and other restrictions in rural areas. Covers households only; institutions' registries also considered. Country Paper for "Improving Disability Data for Policy Use" ESCAP Workshop, Sept 2003
Main Purpose/Users of Disability Data To identify prevalence and spread and promote awareness for policy makers, treatment/assistance providers, and persons with disabilities Country Paper for "Improving Disability Data for Policy Use" ESCAP Workshop, Sept 2003
Future Plans Population Census in 2008, Continuous Cambodian Socioeconomic Survey (CSES) 2006-07, and Cambodia Accident and Injury Survey 2006 all may include modules for disability using a traditional, impairment approach. National Institute of Statistics
Methodology
National Definition of "Disability" or "Disabled Person" "A restriction or lack of ability to perform an activity in the manner or within the range considered normal for a human being.It describes functional limitation or activity restriction caused by impairment." Country Paper for "Improving Disability Data for Policy Use" ESCAP Workshop, Sept 2003
Methodological Approach Impairment-based questions focusing on "type" and "cause" of disability Social Economic Survey (SES), 2003
FIJI ISLANDS
Statistical Indicators
GDP per capita (PPP, USD), 2003 5,880 UNDP HDR, 2005
HDI ranking, 2003 92 of 177 UNDP HDR, 2005
Total Population (in thousands) 848 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 0.01 1981 Employment/Unemployment Survey
Disability Data Collections
Main Instruments Census (1996), and HIES Survey (2003)  
Published Sources of Statistics "Disability Counts in Fiji ", 1996 Census Analysis  
Active Participating Organizations Fiji Islands Bureau of Statistics, Fiji National Council of Disabled Peoples (FNCDP), ESCAP, WHO, ABS  
Mode of Collection Face-to-face interviews 2002/3 HIES Survey, 2004/5 EUS
Coverage Census and surveys cover urban and rural areas, registries are mainly urban only  
Main Purpose/Users of Disability Data To create awareness of related issues and provide information for policy makers Country Paper for "Improving Disability Data for Policy Use" ESCAP Workshop, Sept 2003
Future Plans 2007 Census will potentially include ICF-based disability module Fiji Islands Bureau of Statistics
Methodology
National Definition of "Disability" or "Disabled Person" Must be long-term (more than 6 months) physical or mental difficulty categorized by" "sight, intelligence, hearing, physical, age, or other"; must be reason for unemployment (EUS) 1996 Census, HIES 2002/3, EUS 2004/5
Methodological Approach 3-question short set includes 1 activity and participation question referring to difficulties with communication and "other usual activities" 1996 Census
HONG KONG, CHINA
Statistical Indicators
GDP per capita (PPP, USD), 2003 27,179 UNDP HDR, 2005
HDI ranking, 2003 22 of 177 UNDP HDR, 2005
Total Population (in thousands) 6,889 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 4.0 Survey on Persons with Disabilities and Chronic Diseases, 2000
Disability Data Collections
Main Instruments Survey on Persons with Disabilities and Chronic Diseases (ad hoc) C&SD
Published Sources of Statistics Survey Reports C&SD
Active Participating Organizations Census and Statistics Department (C&SD)  
Mode of Collection Face-to-face interviews Survey on Persons with Disabilities and Chronic Diseases, 2000
Coverage Persons of all ages in households and most institutions (excluding prisons) and persons living on board marine vessels Survey on Persons with Disabilities and Chronic Diseases, 2000
Main Purpose/Users of Disability Data To estimate the prevalence rate for all disabilities and for selected categories, and for information on the characteristics of persons with disabilities C&SD
Future Plans New disability survey scheduled for 4 th quarter 2006-3 rd quarter 2007 C&SD
Methodology
National Definition of "Disability" or "Disabled Person" Those who either (i) have been diagnosed by qualified health personnel as having one or more of the 7 conditions listed below, or (ii) had perceived themselves as having one or more of the first 4 conditions for at least 6 months: 1.restrictions in body movement; 2.seeing difficulty; 3.hearing difficulty; 4.speech difficulty; 5.mental illness; 6.autism; 7.mental handicap Survey on Persons with Disabilities and Chronic Diseases, 2000
Methodological Approach Impairment based questions and medical diagnosis; mental disability is not included in reported prevalence rate Survey on Persons with Disabilities and Chronic Diseases, 2000
INDIA
Statistical Indicators
GDP per capita (PPP, USD), 2003 2,892 UNDP HDR, 2005
HDI ranking, 2003 127 of 177 UNDP HDR, 2005
Total Population (in thousands) 1,103,371 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 1.8 NSSO Survey, 2002
Disability Data Collections
Main Instruments Census, NSSO Survey, voluntary registry  
Published Sources of Statistics Census and survey reports  
Active Participating Organizations Central Statistical Organization (CSO), Ministry of Social Justice and Empowerment, National Institute of Hearing and Handicapped, ESCAP, WHO, ABS  
Mode of Collection Face-to-face interviews NSSO Surveys
Coverage Households only NSSO Surveys, Census
Main Purpose/Users of Disability Data For information on prevalence and cause and socio-economic characteristics of disabled persons for policy and service planning "Statistics on the Employment Situation of Persons with disabilities: A Compendium of National Methodologies" ILO, 2004
Future Plans Census in 2011, NSSO Survey in 2012 CSO
Methodology
National Definition of "Disability" or "Disabled Person" 5 forms: sight, hearing, speech, movement, and mental; "A person with restrictions or lack of abilities to perform an activity in the manner or within the range considered normal for a human being.excludes illness/injury or recent origin (morbidity) resulting into temporary loss of ability" 2001 Census, 2002 NSSO Survey
Methodological Approach Impairment-based categorical model; 1 question in Census 2001 Census, 2002 NSSO Survey
INDONESIA
Statistical Indicators
GDP per capita (PPP, USD), 2003 3,361 UNDP HDR, 2005
HDI ranking, 2003 110 of 177 UNDP HDR, 2005
Total Population (in thousands) 222,781 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 0.7 National Socio-Economic Survey, 2003
Disability Data Collections
Main Instruments National Socio-Economic Surveys  
Published Sources of Statistics Survey reports  
Active Participating Organizations BPS-Statistics Indonesia, Ministry of Health, Ministry of Social Affairs, PPCI disabled persons organization  
Mode of Collection Face-to-face interviews National Socio-Economic Surveys
Coverage Surveys include all provinces  
Main Purpose/Users of Disability Data To identify the existence of disability, type of disability (blind, deaf, mute, deaf and mute, handicap, mental defect, psychotic) and cause of disability (nature, accident, disaster, disease, disturbance) National Socio-Economic Surveys
Future Plans 2006 National Socio-Economic Survey will include 3 ICF-based questions from self care, communication, and movement domains in addition to questions on types of difficulties, and the need for and use of assistance BPS-Statistics Indonesia
Methodology
National Definition of "Disability" or "Disabled Person" "A person with loss or abnormality in body structure or physiological function that influences or causes restriction on activity"; 3 categories: physical, mental, and physical/mental Law No.4 (1997)
Methodological Approach Impairment model National Socio-Economic Survey, 2003
ISLAMIC REPUBLIC OF IRAN
Statistical Indicators
GDP per capita (PPP, USD), 2003 6,995 UNDP HDR, 2005
HDI ranking, 2003 99 of 177 UNDP HDR, 2005
Total Population (in thousands) 69,515 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) N/A  
Disability Data Collections
Main Instruments Census (1976, 1986, and 1996)  
Published Sources of Statistics 1986 Census Report  
Active Participating Organizations Statistical Centre of Iran (SCI)  
Mode of Collection Face-to-face interviews Censuses
Coverage 5 districts in 5 provinces SCI
Main Purpose/Users of Disability Data Welfare organizations  
Future Plans May use census to design a sampling frame for follow-up survey SCI
Methodology
National Definition of "Disability" or "Disabled Person" 2 working definitions: (1) categorical (blind, deaf, voice and speech disorder, amputation, mental disorder, etc.) and (2) need for assistance or aid devices for self care, movement, or communication activities 2005 Census pre-test
Methodological Approach Yes/No question on physical impairment or handicap, impairment/categorical model to identify type of disability 2005 Census pretest
MONGOLIA
Statistical Indicators
GDP per capita (PPP, USD), 2003 1,850 UNDP HDR, 2005
HDI ranking, 2003 114 of 177 UNDP HDR, 2005
Total Population (in thousands) 2,646 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 3.5 NSO-Mongolia Official Statistics
Disability Data Collections
Main Instruments Limited registry in capital city  
Published Sources of Statistics N/A  
Active Participating Organizations National Statistical Office, ESCAP, WHO, ABS  
Mode of Collection    
Coverage    
Main Purpose/Users of Disability Data Registry system records information on the disability type, cause, and age group  
Future Plans Disability module in 2010 Census, a national disability survey, and revision to the current registry  
Methodology
National Definition of "Disability" or "Disabled Person" Persons with "physiological and mental impairment" as certified by Medical and Labour Commissions Provision No.3 of law on "Social security of the persons with disabilities" and working definition for NSO
Methodological Approach Voluntary, impairment-based registry  
PHILIPPINES
Statistical Indicators
GDP per capita (PPP, USD), 2003 4,321 UNDP HDR, 2005
HDI ranking, 2003 84 of 177 UNDP HDR, 2005
Total Population (in thousands) 85,237 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 1.23 Population and Housing Census, 2000
Disability Data Collections
Main Instruments Population and Housing Census  
Published Sources of Statistics Census reports  
Active Participating Organizations Philippines National Statistics Office (PNSO), National Statistical Coordination Board (NSCB), National Council for the Welfare of Disabled Persons (NCWDP), ESCAP, WHO, ABS  
Mode of Collection Face-to-face interviews Population and Housing Census, 2000
Coverage Total population Population and Housing Census, 2000
Main Purpose/Users of Disability Data To enable planners to prepare education, development, and health programs geared towards prevention, rehabilitation, and the integration of persons with functional difficulties into mainstream society Population and Housing Census Enumerator's Manual, 2000
Future Plans New, ICF-based module in a regular survey and revised question set in Population and Housing Census PNSO
Methodology
National Definition of "Disability" or "Disabled Person" Any restriction or lack of ability (resulting from an impairment) to perform an activity in the manner or within the range considered normal for a human being. Impairments may be physical, mental, or sensory/motor. Population and Housing Census, 2000
Methodological Approach Impairment/categorical model; yes/no question on "physical or mental disability" Population and Housing Census, 2000
THAILAND
Statistical Indicators
GDP per capita (PPP, USD), 2003 7,595 UNDP HDR, 2005
HDI ranking, 2003 73 of 177 UNDP HDR, 2005
Total Population (in thousands) 64,261 ESCAP Population Data Sheet, 2005
National disability prevalence rate (%) 1.7 Disability Survey, 2002
Disability Data Collections
Main Instruments Disability Surveys (every 5 years), Bureau of Empowerment for Persons with Disabilities national registry, Censuses  
Published Sources of Statistics Survey reports, regular reports from Bureau of Empowerment for Persons with Disabilities  
Active Participating Organizations NSO, International Health Policy Program (IHPP), Sirindhorn Medical Rehabilitation Centre, Bureau of Empowerment for Persons with Disabilities, Ministry of Social Development and Human Security, ESCAP, WHO  
Mode of Collection Face-to-face interviews Disability Survey, 2007
Coverage Persons 7 years of age and older in households Disability Survey, 2007
Main Purpose/Users of Disability Data To collect data on persons with disabilities and provide adequate services Disability Survey, 2007, Bureau of Empowerment for Persons with Disabilities Registry
Future Plans N/A  
Methodology
National Definition of "Disability" or "Disabled Person" Impairment and activity limitations (6 months or more) Disability Survey, 2007
Methodological Approach Impairment and activity limitation questions Disability Survey, 2007
 
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